ABC’s of Disability Planning

Frequently families like mine don't know what's available to help us, we're too focused on getting through our day-to-day. But even if we had time, we would need to know what to look for. There had to be a better way, so I launched ABCs of Disability Plan


By Eric Jorgensen

https://anchor.fm/abcs-disability-planning

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Videos to teach daily living skills - PICKLE System

September 04, 2023

Videos to teach daily living skills - PICKLE System Pickle System's mission is to improve the lives of individuals with autism and developmental disabilities by providing a personal, accessible, and hands-off resource utilizing video models, image-bas

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Meet. Support. Advance. Raising awareness of another Rare Disease - TBRS Community

August 28, 2023

Meet. Support. Advance. Raising awareness of another Rare Disease - TBRS CommunityTatton Brown Rahman Syndrome (TBRS) is a rare genetic disease caused by pathogenic variants (previously called mutations) in theDNMT3Agene and for that reason, it is als

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Reach. Climb. Go. If you're a wheelchair user get your iBot Personal Mobility Device

August 21, 2023

Reach. Climb. Go. If you're a wheelchair users get your iBot Personal Mobility Device. One device, with 6 modes. Go beyond powered mobility in this revolutionary power wheelchair.The world is not as accessible as it should be. The iBOT PMD provides

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Empowering Kids Through Songwriting - Hear Your Song

August 14, 2023

Hear Your Song empowers children and teens with serious illnesses and complex health needs to make their voices heard through collaborative songwriting.In their kid-driven process, Hear Your Song volunteers help kids write their song lyrics, which are t

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Inclusion Films - Teaching filmmaking to individuals with developmental disabilities

August 07, 2023

Inclusion Films, started in 2007 by veteran filmmaker Joey Travolta, teaches filmmaking to individuals with developmental disabilities in six dedicated production studios throughout California. Students have an opportunity to test their skills and exper

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Protecting and advancing the rights of individuals with intellectual and developmental disabilities - Together for Choice

July 31, 2023

Together for Choice's Mission is to unite to protect and advance the rights of individuals with intellectual and developmental disabilities (I/DD) to live, work and thrive in a community or setting of their choice. Ashley Kim Weiss is a social entrep

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Excellence powered by a neurodivergent team - Aspiritech

July 24, 2023

More than 90 percent of the Aspiritech team members are on the autism spectrum. TAspiretech hires and trains team members and aims to pair them with a client and project that matches their strengths and passions. The team members of Aspiritech represent a

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Developmental Disabilities and Sexuality. Elevatus helps you have these essential conversations.

July 17, 2023

Developmental Disabilities and Sexuality. Elevatus helps you have these essential conversations. As national leaders in the field of sexuality and intellectual, developmental disabilities, and autism they offer evidence and trauma-informed curriculum, onl

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Raising Kellan - Empowering, connecting, and educating parents raising children with a disability. For Parents. By Parents.

July 10, 2023

Raising Kellan Started in 2019. Most non-profits about children with a disability begin with a heart-rending story and the endless search on how to fix the disability.The start of Raising Kellan wasnt about that.You see, in June 2019, while visiting f

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No parent should feel alone. Ever. Parent to Parent USA is here to make sure you don't.

July 03, 2023

Parent to Parent's Vision: Parent to Parent USA will support a network of viable, sustainable, fully-functioning, and effective Parent to Parent programs in all 50states through hands-on support, training and technical assistance, and high-quality to

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Introduction to the Job Accommodation Network

June 26, 2023

The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on job accommodations and disability employment issues. Serving customers across the United States and around the world for more than 35 years, JAN provid

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Invisible no more w/ Leddy Glenn-Ludwig

June 19, 2023

Leddy Glenn-Ludwig is a best-selling author, goal-setting consultant, and self-empowerment coach. In this interview, we talk through what you can do to help yourself if you have an invisible disability. We explore the differences between life coaching, co

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The Internet should be Accessible to Everyone!

June 12, 2023

After over 11,000 Lawsuits, the Trend is Going Parabolic. There was a time when it was possible to get away with having a website that didnt work for people with disabilities. But those days are long gone, and ADA regulations for web accessibility are be

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Eric Presents "Putting It All Together - A Diagnosis to Adulthood Guide"

June 09, 2023

In this bonus episode, Eric presents what parents and professionals should think about at various life stages, starting with receiving the diagnosis and ending when the child turns 21. Included are the question and answer sessions. Here are the transitio

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Bullied Brain Episode 1: Unraveling the Caricature: A Journey Through Personality Disorders and Self-Discovery

June 07, 2023

"You were in a wasteland. And not only were you in a wasteland, but the two of them were predatory. I mean it's pretty unbelievable."Link to download the transcript - https://docs.google.com/document/d/1_DWFHwg1VYGdXogg_Erp5tZlc5VfDwWg/edi

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Becoming rentABLE - the Accessible Short-Term Rental Experts

June 05, 2023

After 20 years of frustration, with very limited vacation options, Lorraine Woodward's family of four, three of whom have mobility issues due to muscular dystrophy, took it upon themselves to create their own accessible property. In 2014, Lorraine’s &

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Trailer: Bullied Brain: Healing from, and overcoming, Trauma

June 01, 2023

This is the first episode of a joint venture between Jennifer Fraser and myself. Jennifer Fraser is the author of The Bullied Brain: Heal Your Scars and Restore Your Health. She has a PhD in Comparative Literature and The Bullied Brain is her fourth boo

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Estate Planning For A Child With A Disability: Beyond the Basics

May 29, 2023

Kim Martin is a trusts and estates attorney licensed in Georgia and Illinois whose practice focuses on estate planning for families with a special needs family member. Her areas of expertise also include guardianship, divorce settlement agreements in case

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Providing assistance for our loved ones with communication issues

May 22, 2023

If I Need Helpunderstands the panic that can overtake a special needs loved one, caretakers, and the community when a loved one with special needs goes missing. Not being able to communicate with others due to a disability or disorder can be frightening

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How families and First Responders can work together to ensure the safety of our children

May 15, 2023

Stefan served as a patrol sergeant in the Chicago (IL) suburbs for ~ 19 years. He started Blue Line Spectrum Safety to provide comprehensive training relating to the unique challenges of those affected by Autism and intellectual disabilities to promote a

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Equipping Teens with a communication toolkit for social emotional well-being

May 08, 2023

Social Optics is a web app that delivers direct instruction in a fun, anime environment. Their software collects data on a student's understanding of communication fundamentals, tracks progress, and provides feedback for students, teachers, administra

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Behavior & Crisis Consulting w/ Barbara Valenzuela

May 01, 2023

Barbara Valenzuela started her company, T&K Innovators, to help families in crisis. They offer training and consulting for adults, with a focus on how to prevent the crisis before it happens. She likes to ask "What brings the caregiver and the pe

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Medicine's dark side, how healthcare is failing some of us

April 24, 2023

Marion Davis is a Marketing Strategist who develops Outreach Campaigns for Disabled Consumers. She's also a writer on Healthcare Accessibility Topics for the Millions of Homebound & Bedbound Patients in the US. She In this episode, she shares th

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Can we stop with the "Inspiration Porn"?!

April 17, 2023

John Loeppky is a disabled freelance writer, actor, and creative currently living in Regina, Saskatchewan. He is the former editor-in-chief of the University of Regina's student newspaper, the carillon. He has published work with Passage, Media Co-op

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Hospice - you can live well even while dying

April 10, 2023

These are some of the most important facts you should know about hospice care: Hospice is for people with advanced illnesses. Hospice provides symptom and pain management for patients with serious illnesses, no matter their age, culture, beliefs, or cau

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Making sure families with Neurological Conditions aren't on the journey alone - Child Neurology Foundation

April 03, 2023

The Child Neurology Foundation connects partners from all areas of the child neurology community so those navigating the journey of disease diagnosis, management, and care have ongoing support from those dedicated to treatments and cures. Their expanding

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STEERus - the world's first soft skills academy

March 27, 2023

STEERus believes everyone can learn but only if theyre willing to put in the work. While some behaviors require extended life coaching or business coaching to see an improved outcome, you can begin making changes in your life with micro-burst coachin

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The role of a Geriatric/Life Care Manager

March 20, 2023

The Option Group is dedicated to offering comprehensive care management services for older adults, adults with disabilities, and adults with chronic illnesses. From Life Care Management services to family caregiver support, their goal is to give your love

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Jacob Levy - Career Coach to the Neurodivergent

March 13, 2023

Jacob teaches job seekers of all abilities how to identify opportunities OUTSIDE of their network by utilizing the LinkedIn algorithm, as well as content creation based on ones subject matter expertise and targeting/adding value to decision makers behind

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Sensory-Friendly Healthcare - helping dentists & physicians reduce sensory triggers

March 06, 2023

There are unavoidable sensory triggers in healthcare settings. A dentist cannot work without putting tools in a patients mouth, and a doctor cannot forgo a necessary shot. However, there are many aspects of a healthcare visit that can be improved upon, b

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Axis for Autism - making Autism evaluations accessible and timely

February 27, 2023

Axis for Autism provides Arizona children, adolescents, and adults with the highest-quality autism evaluations. Theyve built Arizonas most extensive diagnostic system with a deep bench of doctorate-level psychologists, allowing them to serve hundreds of

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Robokind: robots helping Autistic students learn

February 20, 2023

RoboKind is an education technology company that builds next-generation assistive robots and social-emotional curricula for autistic students. Over 400 districts work with RoboKind's CASE-endorsed program which includes facially-expressive robots and an S

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Introduction to Protection and Advocacy Agencies w/ Morna Murray

February 13, 2023

From the Administration for Community Living (ACL): Protection and Advocacy Systems (P&As) work at the state level to protect individuals with disabilities by empowering them and advocating on their behalf. There are 57 P&As in the U.S. and

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Annette Hines - Mom, Special Needs Attorney, Podcast Host, Disability Planning Expert

February 06, 2023

Annette Hines brings personal experience with special needs to her work as the mother of two daughters, one of whom passed away from Mitochondrial disease in November 2013. This deep personal understanding of raising a child with disabilities fuels her pa

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Vest - Your Lifespan Disability Navigator. Come for the app, stay for the community!

January 30, 2023

In less than a minute you can make sure others will know what to do for your child's support and care when you can't be there!Vest is your easy easy-to-use solution to organize, update, and instantly access your child's key information, when and where yo

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Uncommon Sense Parenting with Allana Robinson

January 23, 2023

Allana Robinson is a Parenting Coach and CEO of Uncommon Sense Parenting, as well as a Registered Early Childhood Educator, Mom of two, and military wife. Her mission is to make the mysterious inner workings of your child’s brain not such a mystery anymor

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Wheelchairs don't have to take away your independence

January 16, 2023

Brianna Paauwe became a wheelchair user after a car accident left her with a spinal cord injury. Since the accident, she found her love of helping others through volunteering and going back to school for Human Services, Social Work, and Criminal Justice.

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Adapt, Move, & Gain with Paralympian Swimmer Alyssa Gialamas

January 09, 2023

Don't let your disability keep you from exercising, especially if it's something you enjoy! All of AMG Fitness' programs are free for participants. The workouts in each program are the same, they're adapted to meet an individual's needs - seated, seated a

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How do you protect yourself, or your children, from abuse - w/ Amy Saltzman

January 02, 2023

There is an epidemic of abuse in society.Reports of abuse surface on an almost weekly basis across organizations and industries.Gymnasts abused by Larry Nassar, and in the Olympic programs of at least 6 other countries, female soccer players abused by m

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Are you empowering AAC users, or censoring, and maybe even accidentally hurting, them?

December 26, 2022

Are you empowering AAC users, or censoring, and maybe even accidentally hurting, them? AAC users have little to no control over what words they have to communicate. They rely on whoever programs their device. This could lead to well-meaning individuals in

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Abuse Red Flags with Marvie Corbett, LCSW

December 19, 2022

Abuse Red Flags - do you know what you should be looking for? It's not always blatant. In this episode Marvie shares what parents and professionals can do to spot abuse. Marvie Corbett serves as a Director of Psychotherapy and our Director of Educa

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Marital therapy for parents of Special Needs children with Eleni Paris, LMFT

December 12, 2022

Eleni Paris is a licensed marriage and family therapist in the Tampa Bay area with a bachelor's degree in psychology and a master's degree in marriage and family therapy, both from Virginia Polytechnic Institute and State University.  She has over 20

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Improving assessment and treatment services for children with autism spectrum disorders w/ Blaire Donnelly-Mason

December 05, 2022

The Vanderbilt Kennedy Center Treatment and Research Institute for Autism Spectrum Disorders (TRIAD) is dedicated to improving assessment and treatment services for children with autism spectrum disorders and their families while advancing knowledge and t

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How your State's Developmental Disability Council is helping you - Rachel London, Executive Director Maryland Developmental Disability Council

November 28, 2022

Creating Change Improving LivesThe Maryland Developmental Disabilities Council creates change to make it possible for people with developmental disabilities to live the lives they want with the support they need.Their vision is that people with and wi

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The role of a Pooled Trust - Denise Fike, Executive Director of First Maryland Disability Trust

November 21, 2022

First Maryland Disability Trust specializes in cost-effective, special needs disability trustee services designed to enhance beneficiaries quality of life. They provide families, friends, and individuals with the tools to plan for current and future need

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Helping you create successful habits - Executive Function Coach, Fawzya Khosti

November 14, 2022

Executive Function Coach helps individuals diagnosed with giftedness, 2e, dyslexia, dysgraphia, AD/HD, ODD, dyscalculia, anxiety, "high-functioning Autism", memory problems, and minor traumatic brain injury ("m TBI") improve their executive function skill

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See the Sunshine in Every Child - Sunshine Foundation

November 07, 2022

Sunshine Foundations sole purpose is to answer the dreams of chronically ill, seriously ill, physically challenged, and abused children ages three to eighteen, whose families cannot fulfill their requests due to the financial strain that the childs illn

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Help individuals with cognitive disabilities to achieve independence across all of life’s domains - Avail by CentralReach

October 31, 2022

Founded & launched in 2017 by Lisa Marie Clinton, avail was developed from a desire to both raise public expectations and empower individuals to achieve their goals. Lisa questioned how to revolutionize how individuals were supported, and equip them

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Restoring hope for families with Autism - Nurolux

October 24, 2022

NuroLux is a movement to restore hope for families impacted by Autism by providing them with the team, clinical and educational technology tools, and a plan to light the path ahead.Their Logo & AllianceAs reflected by the three hands protecting the

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RODS Heroes - Helping orphaned children with Down Syndrome come home to loving families

October 17, 2022

Around the world, children with Down syndrome are routinely abandoned and institutionalized for life. This widespread problem seems overwhelming, but there is hope. RODS Heroes wholeheartedly believe that when you become actively engaged in good work, whe

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